I don't want to ask my doctor the chances of my
survival, and I don't want to count how many days
I still have. I don't want just six months--I want a much
longer life. I want to take my children to the places I
have been, and I hope their childhood will be filled with
happy memories. I will do my best for my children and for
the marrow donor--I must stay alive, because this is my
best way of saying thank you to the donor.
--Lu Chiu-hui, trading company employee
Lu Chiu-hui was so busy that she would eat her lunch
while working at her computer. At 6 p.m. she would pick
her children up from school and take them back to her
office, so they could do their homework and stay with her
while she worked overtime.
Chiu-hui had studied international trade in vocational
school and had come to this company of four employees when
she was 18 years old. Within 12 years, the company had
expanded to 300 people. She always rushed against time and
helped the company make a lot of money. Being frank, open,
and kind, she hit it off well with everyone around her.
However, Chiu-hui had been working so hard for so long
that she felt she was about to burn out. When she
consistently began feeling tired and couldn't sleep well,
she went for a checkup. The doctor was surprised by the
blood test results, and he advised her to go to a major
hospital for further tests.
Chiu-hui checked herself into National Cheng Kung
University Hospital in southern Taiwan the following day.
A doctor from the oncology department told her that she
suffered from acute leukemia.
"What?" Chiu-hui didn't comprehend the name.
"It's what most people call 'blood cancer,'"
he explained.
When Chiu-hui heard the more common name for the
disease, she was stunned. "Am I dreaming? How can
this be?" she asked herself. Her sister and husband
were equally taken aback when they heard the news.
Chiu-hui would never forget that awful day, October 19,
2000.
After 30 years of a healthy life, Chiu-hui felt that
the doctor's unexpected announcement was ruthless and
unreal. She was hospitalized the same day, underwent tests
the next morning, and had her first chemotherapy in the
afternoon.
She
hadn't expected to stay in the hospital since she had only
felt tired and had gone for a simple checkup. She worried
about her children and her job. This was the first time
she had taken time off from work since she started, 12
years ago. She became disoriented. Suddenly, her job,
family life, traveling--all that she had considered
practical and important--became irrelevant.
She received five chemotherapy treatments as well as
radiation treatments. They continued until July 2001.
"When goose bumps appeared on my hands and feet, I
knew trouble was brewing. I turned on a heater and a solar
lamp, and put on a jacket and a winter comforter as though
winter were coming. My hands and feet started shaking
faster and my heart beat faster, making me very miserable.
With my shaking hand I would try to put the oxygen mask on
my face. The muscles on my body would be so taut that my
body might break any minute. My neck and waist would be so
sore and painful that I almost fainted. I told myself that
I had to hold on."
"Then I would start to feel as hot as though I
were in an oven. I would turn off all the heaters and turn
on the air conditioner. I took off my clothes, socks and
the comforter, but I still felt very hot. My temperature
would rise to over 40 degrees Celsius [104;],
and I was very scared..."
Heaven didn't seem to be listening to how she felt.
After suffering six months of chemotherapy, the doctor
told her that the leukemia had not been cured.
Chiu-hui didn't want to deal with her sickness.
Instead, she hid it and traveled to China with her husband
and children. "I just wanted to spend more time with
them," she explained. She was very upset because she
didn't know if she still had a future. She wrote an e-mail
to her colleagues and told them about her feelings after
becoming sick. In response, her colleagues gave her a
thick book full of their blessings. This book accompanied
Chiu-hui through her tug-of-war with death.
I want to give up
Dear Chiu-hui: Everyone has to
experience pain and suffering. You just happen to be
experiencing it earlier than other people. You have to
make it, all right?
Chiu-hui again underwent chemotherapy and experienced
the same pain once more. Three chemotherapy treatments
almost wiped out her will to live.
One afternoon, she had a fever of over 40 degrees
Celsius. When her mother entered the ward and noticed that
the whites of her eyes had turned up, she immediately
called a nurse. After emergency treatment, Chiu-hui woke
up to find tubes all over her body. She felt dizzy and
thought that she would die. She vomited continuously. Her
body felt fatigued. She asked for the date, because she
thought it might be her last day.
At three o'clock, she thought, "Stop the
treatments, because I want to give up!" Then she
remembered her children always left school at four, and
she didn't want them to miss their mother after school.
She clenched her fist tight so that the nurse could
extract a blood sample for testing.
Then her body seemed completely paralyzed and she was
half asleep. Chiu-hui sensed that a group of people was
working hard for her. She also felt that she was willing
to give up her life, but she didn't really want to.
I am not sure I can win
Dear Chiu-hui: You are
experiencing so much pain in the hospital. We're concerned
about you and want to give you our blessings.
The chemotherapy failed to cure her leukemia, so a bone
marrow transplant became her only option. Chiu-hui was
able to find a suitable match in the Tzu Chi Bone Marrow
Donor Registry, which stores records on over 200,000
potential donors of Asian ancestry.
Chiu-hui was fortunate. A stranger responded to her
call and donated his marrow. Their tissue types matched,
but from a strict medical point of view, the tiny antigens
in the blood might not match, so before the transplant the
doctor told Chiu-hui that there was still a possibility of
rejection.
Chiu-hui knew that if she didn't undergo the
transplant, she would only have six months to live. But if
the transplant failed, she would lose her life even
faster. "I don't want just six months of life, I want
a much longer life," she thought.
Her desire to live left her no choice, so she chose the
transplant, even though the chances of success were slim.
"I felt like I was going to war, but I wasn't sure if
I could win," said Chiu-hui. She admitted she was
frightened by watching other patients in the ward die one
after another, or by hearing the sounds of nurses running
or the sounds of an emergency treatment. She wanted to
lock herself up in a room alone to keep out any
disturbance.
Keep walking
To our beloved Chiu-hui: We must
go see the sunrise together!
While Chiu-hui was getting ready for the transplant,
volunteer Kuo Shu-ching from the Tzu Chi Bone Marrow Donor
Care Team came to see her every Thursday. Shu-ching was
also a volunteer at the palliative care ward and oncology
ward at the National Cheng Kung University Hospital. When
Shu-ching had become familiar with Chiu-hui, she
understood her anxiety. Fever and medications made Chiu-hui
very dizzy, so she needed positive, encouraging words.
Shu-ching often recited aphorisms from Master Cheng Yen's
Still Thoughts, such as "Harbor good thoughts,"
or "Do not punish
yourself with other people's faults," as a way to
remind her to maintain good thoughts inside. Chiu-hui felt
these thoughts were logical, so she would copy them down
and share them with other people. Shu-ching also gave her
other Tzu Chi publications to help her find spiritual
support.
Knowing that Chiu-hui constantly felt depressed,
Shu-ching would invite other volunteers to eat with her or
chat with her to cheer her up. Shu-ching owned a beauty
parlor, and when she noticed that Chiu-hui's hair had
started to fall out, she used her professional skills to
make Chiu-hui beautiful again.
Shu-ching said that her father-in-law had died of lung
cancer in 1994, so she understood very well the torment of
cancer patients and their families. Therefore, she became
a hospital volunteer to care for patients inflicted with
strokes or cancer. For the past decade she had been on
duty in the hospital every Tuesday and Thursday. She had
accompanied any number of cancer patients and their
families and had experienced their ups and downs with
them. Shu-ching said that she learned a lot from these
patients.
I can't fall
Dear Chiu-hui: We're still
waiting to pick grapes with you and your cute kids!
For the past decade, Chiu-hui's job, marriage, the
birth of her children, and everything else had been very
sure-footed and went as planned, but now her illness
pushed her close to death and came close to ruining her
life. She had to lie in bed and had no control over
anything. Whenever the night came, she always felt very
lonely. To avoid any distractions, she used sleeping
pills.
Nevertheless, her children would come to the hospital
and stay with her. [In Taiwanese hospitals, families are
encouraged to stay with patients.] Sometimes they would
sleep with her in the hospital and go to school the next
day. Unless Chiu-hui had a fever, she always bathed her
children and helped them with their homework. She also
trained her seven-year-old son to buy boxed meals at a
convenience store downstairs and to ask a clerk to
microwave them.
To a sick mother, it was tormenting to have to give her
children such training, but she did not know what the
future might hold. Training them early made her feel
better.
When she thought of her children, her will became
indomitable. She constantly encouraged herself, "I
have to hold on. Otherwise, what will happen to my
children?"
However, Chiu-hui was very sorry for her mother, who
was over 60 years old. She knew that Chiu-hui had no
appetite because of the chemotherapy and because she
didn't like hospital food, so every morning she bought
fresh groceries and cooked them at home. Then she rode her
bicycle to the bus stop, took a 40-minute bus ride, and
then walked 15 minutes to the hospital to deliver the hot
lunch. Her mother would then go home in the afternoon,
because she didn't like to leave her 70-year-old husband
at home alone.
Chiu-hui recalled that when she was a year old, her
small intestine developed a problem and her mother used
all of her savings to pay for an operation. Now that Chiu-hui
herself was a mother and a wife, she felt bad that her
mother again had to give so much to care for her.
Chiu-hui's mother suffered from degenerative arthritis,
and her knees swelled up from traveling to see Chiu-hui
every day. Chiu-hui thus hoped that she would get well
soon so that she could spend more time with her mother.
My future is waiting for me
Dear Chiu-hui: Please get well
soon, so that you can get all dressed up and we can go
window-shopping together!
Chiu-hui heard that some patients wrote their wills
before the transplant because they were afraid they might
not make it. However, she didn't want to do this. She
still had responsibilities and two children, so her
transplant simply had to be successful!
One week before the transplant, she was moved into a
bone marrow transplant ward to receive a high dosage of
extermination therapy to kill off all her marrow and to
completely remove all the cancer cells. For four
consecutive days, she swallowed 30 pills four times a day.
She became very frail and didn't have enough strength to
move
around. She started to wonder if she would make it.
On July 5, 2002, three bags of bone marrow arrived. Her
relatives and friends stood outside her ward and watched
the drops of bone marrow flow into Chiu-hui's body. They
were more nervous than she was. When the transplant was
over, it was after 11 p.m.
Everything went well, but Chiu-hui knew that this was
only the beginning. The road would still be very long and
painful.
She was in the ward for over a month. She didn't feel
well and couldn't do anything. She tried to eat a little
and drank 500 c.c. of nutritional fluid, but then threw it
all up right away.
"Whenever I was in pain, I told myself that
everything would go away. Just hold on a little longer and
then my future would be beautiful. Otherwise, all the hard
work would be wasted. I had been suppressing my feelings
and didn't want to tell anybody about them. After I was
transferred to a general ward, I became very emotional. My
family cared for me, but I often rewarded them with my bad
temper. I was afraid that my confidence would fall
apart... Whenever I was alone, I would weep. I told myself
that I had to be strong and work hard."
Discharged from the hospital
Hi toots: You're braver than all
of us, because you're facing a challenge that none of us
have ever faced.
After Chiu-hui was moved into the general ward,
Shu-ching invited other volunteers to care for her and
talk to her to help tide her over the hard times.
Chiu-hui had canker sores inside her mouth and eating
was torturous. In addition, she would involuntarily
tremble so hard that when a volunteer fed her lunch, it
would take her two hours to finish. Sometimes when she
held her pills in her hand, a dull look would come over
her eyes because she was afraid to take the pills. The
volunteers would coax her into taking the pills as if she
was a child.
About a month after the transplant, Chiu-hui was
discharged. She knew that some patients went home and died
because, with their low immunity, they would contract
septicemia, pneumonia, or other serious complications.
Therefore, she often rested in her room to avoid contact
with other people. Nevertheless, she had no strength to do
anything, and she simply curled up in bed. She said,
"It was like I was carsick, only it was for 24 hours
a day."
Chiu-hui took anti-rejection pills four times a day,
and just thinking of them was enough to make her sick. She
remembers that if she burped, the stench of medicine would
emanate from her mouth. And if she vomited out the pills,
she just had to take them again.
During this period, she contracted a herpes virus that
made her belly painful and itchy. She also constantly felt
thirsty and had folliculitis on her feet. She had three
biopsies to see if these problems were caused by rejection
of the new marrow.
"I couldn't find a way to make myself
comfortable," said Chiu-hui. Resting at home was more
painful than the chemotherapy in the hospital. She even
had no appetite for her favorite food: chocolate. And
orange juice tasted so bitter to her...
I needed my children
Chiu-hui: We can hardly ever take
any breaks in our busy lives, so take this opportunity and
get more rest!
"I don't want to ask my doctor about the chances
of my survival, and I don't want to count how many days
are left for me. I know if I ask, I will get a number.
Because I don't want that, I don't count the days. I only
have my children in my mind. I want to take them to the
places I have been, and I hope their childhood will be
filled with happy memories."
"Today is the beginning of winter. I am
hospitalized again because I have a fever. It is the 170th
day since my bone marrow transplant. My two children are
my strength. They can still grow up without me, but I
can't live without them. You two have to wait for me to go
home with you, and Mommy will also try to live!"
Her seven-year-old son once asked her, "Mommy,
will you die? Will you go to heaven?"
Chiu-hui said it was heartbreaking to hear this, and
she replied, "Even if I went away, I would become a
star in the sky and look down on you..." She became
choked up with tears and couldn't continue speaking.
After enduring this kind of suffering, Chiu-hui now
always feels very fortunate if she can smoothly eat a bowl
of rice and drink a cup of water. Even better is that she
can stroll around and even ride her motorcycle.
I want to live
Dear Chiu-hui: Look upward,
because heaven is blessing you with recovery. Look
forward, and you will see a bright future waving at you.
Look to the right and the left, and you will find us
standing by your side giving you support!
One year after receiving the transplant, Chiu-hui's
condition had improved so much that she wished to become a
volunteer too. Shu-ching also hoped that Chiu-hui would
get out of the house more often, so she invited her to
help organize books at the Tzu Chi Tainan branch office.
The work would not be very stressful, and Chiu-hui could
also read Tzu Chi publications so she wouldn't become
depressed.
Shu-ching also told Chiu-hui that she could make great
contributions to society by encouraging other patients
with her own experience so that they could steadfastly
face their challenges. Chiu-hui agreed cheerfully to
become a volunteer.
Through her recovery from blood cancer, Chiu-hui
realized that a person's will is very important. If a
person loses the will to live, no one else can help.
Therefore, she often encourages other patients to find
their hopes, which will help them move forward.
To the stranger who donated his or her marrow, if she
ever had the chance to see him or her, she would thank the
donor in person. She said, "The best way I can pay
him back is to stay alive, so I won't waste his
love."
......
Since returning to her office, Chiu-hui still faces the
same workspace and the same tasks, but now she has a
completely different perspective.
She thinks that her cancer occurred because of her
heavy workload, stress, and negative emotions. Otherwise,
why did she have leukemia when she had hardly ever even
caught a cold? Therefore, she often tells her friends and
other patients not to get fussy over trivial matters and
not to give themselves too much stress. People have to
stay optimistic. Right now she still works as hard as
ever, but because of her new mentality, she is learning to
relax and to find some pleasure in her busy lifestyle.
She has become more relaxed in life and less picky
about time and money. She says, "It's fortunate that
the whole family can be happy and healthy." She
remembers what Shu-ching told her--to bless herself more
and to commit herself to helping the needy. She believes
that after she fully regains her health, she should
volunteer to help others.
It has been two years since the transplant, and Chiu-hui
believes that she is fortunate enough to be able to look
back upon the whole thing. But she also realizes that
there are still many blood cancer patients in hospitals
waiting for a suitable donor. And they aren't sure if they
are strong enough to wait that long.
She thinks for a moment and writes down in her diary,
"It's okay to have regrets, but not without
hope!"
The Moment They Met:
Lu Chiu-hui and Yang Wen-hsiao
By Li Wei-huang
Translated by Lin Sen-shou
Photograph by Yen Lin-chao
When Yang Wen-hsiao appeared on the stage in a white
T-shirt and black trousers, Lu Chiu-hui, sitting in the
audience, was already crying so hard that she couldn't
see.
When the master of ceremonies announced that the marrow
recipient could go onstage to meet the marrow donor, Chiu-hui
immediately ran upstage and hugged her lifesaver. Yang
patted her on the back and saw for himself that she was
still alive and well. Two years of concern about her
simply disappeared.
Chiu-hui's
skin became darker after the transplant. Her blood type
was originally O but has now changed to type B, the same
as the marrow donor's. Her hair has also become thicker
and darker. In addition, the pores in her skin have become
bigger. While watching these changes, Chiu-hui had tried
to create an image of her lifesaver in her mind.
With his thick, curly hair and robust body, Yang
matched Chiu-hui's imaginary picture. Both of them
happened to be of the same age; she was a mother and he
was a father. When they spoke about the marrow donation,
they felt as though they had known each other for a long
time.
Yang donated his marrow and saved Chiu-hui and her
family. Chiu-hui's mother was so delighted she put on
makeup (something she rarely did) and came to Hualien with
Chiu-hui to thank him in person. She held his hands
tightly when they met.
Yang came to Hualien one day early, and that night
Typhoon Rananim swept briefly across Taiwan. He said with
a smile that the day he donated his bone marrow had also
been a typhoon day. Thus, his memories of Hualien
consisted of typhoons and bone marrow.
When Yang donated his bone marrow, it was the first
time he had ever received general anesthesia. He
explained, "I didn't want any more broken
families." He recalled that approximately nine years
ago, his wife had suffered a miscarriage. Putting their
grief aside, the couple donated the fetus to a hospital
for research, hoping to be of service to society.
Therefore, Yang felt that even though he had lost a child
nine years ago, donating his bone marrow was a chance to
make up for what he had lost.
After the donation, Yang always thought about the
recipient whenever he went to the hospital or heard an
ambulance siren wail by. "How is the recipient
doing?" he would ask himself.
Yang has now brought his blessings to Chiu-hui in
person.
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