With
her long hair and slightly darker complexion, Yang
Pei-ying does not look any different from her classmates.
The only things that set her apart are that she cannot
take strenuous exercise and that she often dozes off in
class.
She is afflicted with an inherited blood disease--thalassemia
(also known as Mediterranean anemia). The disease is often
classified as either major or minor. Most patients with
thalassemia minor don't have any symptoms. Unfortunately,
both Pei-ying's parents have thalassemia minor, thus
making the girl a thalassemia major patient who has to
rely on regular blood transfusions and other medical
treatments to sustain her life.
Pei-ying's bone marrow cannot make enough hemoglobin on
its own, and her spleen is so swollen that she must avoid
doing strenuous exercise in order to prevent it from
getting hurt. The regular blood transfusions she has
received for so long have caused iron to accumulate in her
body. If the excess iron is not removed, it could affect
her liver, heart, and internal secretion system.
Therefore, aside from taking blood transfusions, she also
has to be treated with iron chelators to alleviate the
harmful accumulation of iron.
Pei-ying comes from a family that has difficulties
making ends meet. Since her father's leg was injured in a
car accident many years ago, the burden of supporting the
family has fallen on her mother. In addition to her
parents, her younger sister, grandparents,
aunt, and uncle make up the rest of the family. The eight
of them live in a small rented apartment of about 80
square meters [861 sq ft].
Ever since Pei-ying was born, she has been afflicted
with illness and poverty. She needs to have 500 cc of
blood transfused into her every month, and needle holes
can often be seen on her thin arms. Even though this is
the case, she still longs to have good health. She always
looks forward to her mother's paydays because then she can
receive blood transfusions and get enough energy to go to
school.
Presently, the only cure for thalassemia major is a
bone marrow transplant. Four years ago, in order to try to
save Pei-ying's life, Pei-ying's mother intentionally
became pregnant and gave birth to a baby girl so that
Pei-ying could have another chance at finding compatible
bone marrow. Because of the family's poor financial
situation, however, she hesitated to let Pei-ying undergo
the necessary tests for a transplant operation. The more
blood transfusions Pei-ying took, the more iron
accumulated in her body. Over 6,000 grams of iron finally
accumulated in her, 20 times the normal amount. Her life
was like a candle in the wind, but her parents were
helpless about the situation.
The sad truth
Hsinpu Elementary School is located in Panchiao, Taipei
County, near an MRT train station. Shen Tzu-hsin has been
teaching here for 28 years. Shen said that she used to be
a dogmatic teacher who was eager to do well in everything.
If a class she taught failed to win first place in a
competition, she always made sure to give her students a
good tongue-lashing.
This kind of behavior did more than distance her from
her students--even her colleagues kept her at arm's
length. When her father died, she was overcome by grief
and could find no outlet for her emotions. It was then
that she joined the Tzu Chi Teachers Association. There
she learned to soften up and to stop torturing herself.
Gradually her passion for education was rekindled and she
became recharged with a sense of mission.
She began teaching aphorisms selected from Master Cheng
Yen's Still Thoughts in her classes seven years ago.
Although this increased her workload, the response from
her students has been so good that she is more than
willing to continue doing so.
Last year, Shen became the homeroom teacher of Class
5B. After some time, she found that one of the students,
Pei-ying, was different from the others. She was unkempt
and spiritless every day. Her bad sanitary habits and body
odor kept her classmates away from her, and very few
people wanted to play with her during recess.
Pei-ying often put her head down on her desk and
slept--sometimes even from first period to lunch break.
After eating lunch, she would continue sleeping until the
end of the last period. Worried, Shen asked her, "Do
you stay up all night playing?" "No,"
answered the girl, with tears filling her eyes.
Shen tried to phone Pei-ying's parents, but the number
had been disconnected. She wrote messages and questions in
Pei-ying's personal notebook, but they were never
answered. She decided to take further steps to find out
what kind of family Pei-ying came from.
One day, Pei-ying fainted during class. Shen took her
to the nurse's office, and there she discovered that the
girl was afflicted with thalassemia major. She visited
Pei-ying's home and found that her mother worked night
shifts in a factory, ranging from 8:00 p.m. to 8:00 a.m.
Pei-ying had to take care of both herself and her younger
sister, who was still in kindergarten.
Because Pei-ying's family was often unable to pay for
her blood transfusions, even though they cost only NT$108
[US$3] each time, the girl could not receive proper
treatment regularly. That was why she was often so languid
and had problems staying awake in class. After Shen
learned about this, she often gave the girl financial
assistance. She also helped her apply for charitable
subsidies provided by the school.
Pei-ying was a frequent visitor at the nurse's office.
According to the school nurse, Liao Yueh-ying, Pei-ying
never complained about anything and was always caring
towards others.
Shen said that although Pei-ying was ill and poor and
disliked by her classmates, she did not give up on
herself. Instead, she lived her days optimistically and
cheerfully. Other children should really learn from this
positive attitude of hers.
Inspirations from a child
patient
Some time later, during a school activity, Shen talked
about a child patient in the Hualien Tzu Chi Hospital who
had been born with a skin-dissolving disease. The child
patient's name was Kai-wen. The disease he suffered caused
blisters to appear on his skin,
which easily rubbed off when the blisters burst. His oral
cavity also constantly had blisters. The pain he endured
was excruciating. With help from a medical team and
volunteers, however, he was able to fight his disease
bravely.
Kai-wen's story deeply touched the whole class. At that
moment, Pei-ying stood up and volunteered to share her
feelings with her classmates. "Poor Kai-wen! Although
I'm sick myself and have to go to the hospital every month
for blood transfusions, I'm not afraid of the pain. I'll
live bravely!"
Pei-ying then burst into tears. Shen was surprised that
Pei-ying would express her feelings in public. She took
the opportunity to explain to the class what disease
afflicted Pei-ying and why she had to receive blood
transfusions. "I hope you can all accept Pei-ying and
give her love and care."
From that moment on, the class began to treat Pei-ying
differently. She changed from the most unpopular student
to a little princess showered with love.
Lai Tzu-ying, who used to avoid her as much as
possible, began to play with her during recess. "The
more time I spend with Pei-ying, the more I realize that
she is a kindhearted girl."
When enthusiastic Huang Li-ting learned that Pei-ying
had not had breakfast on a particular day, she would buy
breakfast for her. Lin Yu-wen, who liked to braid her
classmates' hair, combed and arranged Pei-ying's hair. Wu
Meng-ting, the class leader, had not dared to get near
Pei-ying in the past, but now he often lent her paper or
other school supplies.
Huang Po-chih even asked to be seated next to Pei-ying.
When Pei-ying failed to learn a subject well, he would
teach her. When Pei-ying fell asleep at her desk, he would
cover her with a coat to keep her warm. He also helped her
clean her desk drawer and carry heavy things. Worried that
she might trip and fall while walking, he even followed
her wherever she went.
In fact, it was not only Pei-ying's classmates that
changed, but even Pei-ying herself underwent a
transformation. She came to realize that the reason her
classmates had rejected her was not her illness, but her
untidy clothes and appearance. She changed her personal
habits and often shampooed her long hair to make it smell
better so that her classmates would be more willing to get
closer to her.
The story of the child patient inspired love in the
students. Shen said, "This goes to prove that a
child's mind is like a sheet of white paper. Children are
apt to absorb whatever messages are conveyed to
them."
The class plan
In
September last year, a Tzu Chi TV crew went to Hsinpu
Elementary School to document the school life there. The
crew was greatly touched by the heartwarming relationship
between Ms. Shen, Pei-ying, and the other students. After
the filming, they went to the hospital where Pei-ying was
being treated to inquire about her condition. They were
told the cruel news: if Pei-ying did not undergo a bone
marrow transplant as soon as possible, she might have only
a few more years to live.
The class decided to take active steps to save
Pei-ying's life. Under Shen's direction, they passed a
resolution to hold a bazaar and sell second-hand goods to
raise money for Pei-ying's surgery. Student Lin Yu-wen
donated the dolls that she had treasured for many years.
Huang Po-chih contributed a teddy bear that had been his
childhood playmate. Other students also brought school
supplies, comic books, and video games to school in hopes
of turning them into funds that would help save Pei-ying's
life.
The class made many posters advertising the sale and
posted them in different corners of the school. They also
learned the art of selling in Shen's class. Then they
split into four groups and went to the other classes to
sell the goods. Teachers and students responded cordially
to their charitable efforts.
In addition to the bazaar, the students also collected
recyclable materials to raise money. The class leader, Wu
Meng-ting, even carried a piggy bank around with him every
day so he could collect small change from his classmates.
Shen said that this group of twelve-year-olds relied
completely on their own strength to raise funds for
Pei-ying. Although the money they raised was far from
enough to pay for the marrow transplant surgery and the
following treatment, they had a precious experience of
doing good and helping others.
While the whole class was raising money for Pei-ying,
Pei-ying's mother took her and her younger sister to
National Taiwan University Hospital for tests.
Unfortunately, the test results were negative--Pei-ying's
younger sister could not donate her blood marrow to
Pei-ying.
Pei-ying remained strong and tough after hearing the
unfavorable news. "I'm not sad," she said.
"If I were sad, I would have no friends."
Pei-ying's classmates, however, burst out crying when they
heard the news. Depressed, they were not even able to
concentrate on their lessons. Shen comforted them by
saying, "Since it's an established fact, crying will
only make Pei-ying sadder. We must help her by giving her
more love!"
"Pei-ying is a brave, optimistic, and grateful
child." Five minutes before school was dismissed
every day, Shen led the whole class in praying for
Pei-ying. Everyone held a candle in their hands and sang a
song entitled "Prayer." They prayed sincerely
that Pei-ying would grow up to be a healthy and happy
young lady.
Shen will retire this year. Pei-ying's class is the
last class she will teach in her 31-year teaching career.
She believes that the students of the class, who
unconditionally give their love to Pei-ying and to one
another, will always cherish the sweet memory of their
friendship and cooperation.
Postscript: After Pei-ying's story was covered by Tzu
Chi publications and the Tzu Chi TV station, Master Cheng
Yen decided to offer her any necessary assistance.
Currently, Pei-ying's condition is being closely monitored
by doctors from the Tzu Chi hospitals. A free marrow
transplant will be provided for her once a suitable marrow
donor is found.
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