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She
once received a kidney from a stranger so she could be
free from the dialysis she had had for over a decade. But
when the cancer ended her life, she left behind her
corneas to bring light to another stranger’s life….
In January 2000, Li Chiu-hsiang received a transplanted
kidney. Dr. Li Ming-che of the organ transplant team at
Hualien Tzu Chi Medical Center asked her if she wanted to
keep her Tenckhoff catheter, which had accompanied her
through years of kidney dialysis treatments, as a
souvenir. She replied, “No way! I want to say good-bye
to it forever!”
In
summer 2003, a malignant tumor was found on Li’s other
kidney; the cancer had already metastasized to her bones.
She knew chemotherapy would be useless, so she refused any
treatment. She also decided to donate her organs because
she had once received such a blessing from a stranger.
On April 16, 2004, at Hualien Tzu Chi Medical Center,
Li spoke of her wish as though in a dream: “Dr. Li,
thank you, I still need your help with my last wish.”
The following day, Li passed away with her family by
her side. The organ transplant team at the Tzu Chi Medical
Center took her corneas, fulfilling her wish of leaving
her love behind in the world.
We are glad that we had a chance to interview her
before her death. She let us see the changes in her
psychological state after she became ill. We learned many
things from her, and, with her agreement, we would like to
pass on her story to the public.
When she was 24 years old, she
suffered from a kidney illness. It was so serious that she
needed dialysis. She couldn’t accept this fate until a
word from another kidney patient woke her up.
Li was born in Chihsingtan, a small village near
Hualien. Her father was a fisherman and her mother was a
farmer who later ran a food stand.
After finishing high school, Li helped out at her
mother’s food stand. In 1990, she went to work with
friends in Taipei. A year later, her colleagues noticed
that her figure seemed to be becoming rounder. She found
that her legs had become as thick as an elephant’s and
that she couldn’t put her shoes on. The doctor
discovered that she suffered from edema caused
by her kidney illness. She was only 24 years old.
Li didn’t know much about her kidney disease. She
took some medicine and the edema disappeared, so she went
back to work. Whenever the edema reappeared, she would
take the medicine and take
some time off from her work. Unfortunately, the condition
became worse, and she eventually had to quit her job and
stay at home.
Li said that at that time, she turned her stomach into
a mini drug store, because she would try any medicine that
anyone introduced to her. She went all over Taiwan to find
doctors and try their special recipes. She was so worried
about her illness that she simply accepted any medication,
Western or Chinese, given to her. She thus wasted a lot of
time and money and also caused even more damage to her
kidneys.
Li’s mother would boil some herbs for her every
morning, but Li didn’t want to drink the concoction.
Sometimes she would drink some in front of her mother and
pour the rest out when she wasn’t looking. Her mother
later found out about it, but she didn’t scold her.
Instead, her mother felt sorry for her for having drunk so
much bitter herbal liquid. She sympathetically said to
herself, “It’s okay if she wants to skip it for a day
or two since she has drunk so much anyway.”
Two years later, Li had palpitations and couldn’t
eat. She was diagnosed with acute glomerulitis, and she
started her dialysis.
Her first dialysis was carried out by inserting a
catheter into a vein in her neck. It was very painful, and
her sister, who had accompanied her to the clinic, almost
fainted while watching the procedure. Li was doing her
dialysis in Kaohsiung, but in May 1996, Hualien Tzu Chi
Medical Center opened its peritoneal dialysis center, so
Li went there instead. She also signed up for a kidney
transplant.
Yu Chun-hui, chief nurse of the dialysis center, was
the first nurse Li met when she went there for dialysis.
Yu recalls, “Li chose peritoneal dialysis so she
wouldn’t need to travel back and forth between home and
the hospital. However, the dialysis didn’t go well, and
she had edema.” Li found it very difficult to deal with
this failure.
Li and her mother traveled to the United States with a
group of kidney patients, and she was surprised to see
that her fellow travelers could happily lead a quality
lifestyle. One patient noticed that Li’s mother would
bring food to Li and would eat anything Li didn’t like.
This kind patient told Li not to be too dependent, and she
also reminded Li’s mother not to be overprotective of
her daughter.
The words really woke Li up and she vowed to pull
herself together. She bought a treadmill for exercise. At
first she could run no more than five minutes, but
gradually she was able to run 20 minutes nonstop.
Li was a kind person. When she went to the doctor, she
would chat with other patients. If she learned that an
elderly patient came from far away, she would let that
patient see the doctor first, explaining that she was
there mainly to pick up her medication, so she wasn’t in
a hurry. If a patient complained that they had been
waiting too long, Li would tell them, “A good doctor
always explains to patients the details of their
illnesses. We certainly would prefer to talk to the doctor
a bit longer to clarify our questions, wouldn’t we?”
The patient’s uneasiness would soon be soothed.
For seven years she couldn’t
urinate, but after the kidney transplant, when the urine
started flowing into the hospital bedpan, she thought it
sounded like music.
On January 4, 2000, the organ transplant team at
Hualien Tzu Chi Medical Center called Li and told her that
she might have a chance for a kidney transplant and that
she had to wait at home for further news.
Li was shivering with excitement, but she also wondered
if all this could be true. She had been notified of a
possible transplant twice before, but they both fell
through because the donors’ tissues didn’t match. She
said that she felt like she was riding a roller coaster.
She was too agitated to eat her lunch.
At 3 p.m., Li’s operation schedule was confirmed by
the hospital, and she was wheeled into the operating room
at 5 p.m. When she woke up, she had a new kidney in her
lower right abdomen. She still clearly remembers this
event four years later. “When I woke up from the
surgery, there were so many tubes in me. I couldn’t move
around, but there wasn’t any pain either.” But she
still remembers clearly that it was very painful when the
Teckhoff catheter was removed from her body.
Li said with a smile, “I was in the hospital for 21
days, because my new kidney wasn’t working--it loved to
sleep and refused to work.” Usually a newly transplanted
kidney starts working right away; but her kidney had been
taken from a donor who was in shock, so its condition was
different.
The kidney didn’t work for the first three days after
the transplant. She thought that it might just be slow, so
she had to give it some time. But a week later, it still
was not working properly. Volunteer Lin Pao-tsai, who
constantly came to see her, told her to be kind to it and
talk to it more often.
Li would touch her lower-right abdomen, where the new
kidney was located and talk to it: “We are one living
community. You take care of me, and I care for you. We
support each other. You have to start functioning so I can
carry on with my duties.” Li also gave its new kidney a
name, “Right Kidney Li,” and reminded it constantly,
“I still have so many things to do. Since we are bound
together, you have to help me.”
Her brother and sisters would phone every day and ask
whether the new kidney was obedient and working. Li
recalled that they would also chant Buddhist sutras and
dedicate the merits to Right Kidney Li. Perhaps because so
many people were caring about it, the new kidney finally
woke up and started working.
The catheter was removed, and Li urinated in a bedpan.
She said that she hadn’t heard the sound in almost seven
years, ever since she started her dialysis. She thought it
sounded like music. She was as grateful and happy as the
earth when the rain finally comes after a long drought.
“I wept and joyfully told my mother that I urinated 50
cc.”
She is grateful for the generous
gift from the donor, the love from her family, and the
loving care from the medical team.
While Li was hospitalized, her mother and sister
basically lived in the hospital with her. (In Taiwanese
hospitals, families are expected to help take care of
patients, and cots and even kitchens are provided for
their use.) When her sister got off from work, she would
come to the hospital to take their mother to a night
school, where she was studying for her degree, and then
return to the hospital and stay with Li until dawn. Then,
her sister would go to work, and their mother would come
to the hospital with her homework.
Li
said that her family members wanted to donate their
kidneys to her, but none of them was a match. With tears
in her eyes, she added that her family’s love for her
was enormous. Ever since she became sick, one of her
sisters had taken care of everything, humbly saying,
“God sent me to take care of you.”
Besides her family, Li also wanted to thank the donor
and the medical team who treated her like a family member.
She said, “Dr. Li Ming-che is very kind. If a patient
has a question, he will explain until the patient fully
understands. He visits the wards many times a day, even on
Sundays.”
Li was finally discharged from the hospital after the
new kidney started working 10 days after the transplant.
Volunteers visited her often to see how she was doing.
When they went to see her, they also invited her
95-year-old grandmother to join them. The old lady was so
happy to see them that she even sang songs for them.
Li’s transplant was ultimately very successful, and
there was no sign of any rejection. She also became a
model for all kidney patients. She once talked to a kidney
patient who really did not want a kidney transplant. This
patient felt it disgusting to have someone else’s kidney
in his body. He was afraid the transplant might fail, and
he also worried that it would be a lot of trouble to look
after the new kidney. Furthermore, he would have to take
medicine for the rest of his life to prevent his body’s
rejection of the new kidney….
Li told the patient not to be so fussy, since this was
a great opportunity. If he didn’t take the risk, he
wouldn’t be able to enjoy the results. One should always
take good care of his body anyway; if not, even a good
kidney would not be able to survive an irregular lifestyle
and abnormal diet.
With encouragement from Volunteer Lin Pao-tsai, Li also
appeared on Tzu Chi Great Love TV to tell her own story.
She said that a mother saw her on TV and asked her many
questions about how to take care of a kidney patient,
because her own daughter was undergoing dialysis as well.
Li felt that Tzu Chi TV was very influential, since it
allowed her to make friends with many people.
Li said that before she became ill, she lived her days
blindly, but after she became sick, she realized that life
was impermanent. Everyone has to grasp every moment, or
else at the end they will regret not having done enough.
After her corneas were removed,
she smiled more brightly. Her lips curved like a crescent
moon, expressing her joy at fulfilling her last wish.
Li finally received a healthy kidney so she could be
free from dialysis, but another lethal illness struck her
out of the blue. In July 2003, her waist hurt and she
couldn’t walk properly. In the hospital, she was
diagnosed with a malignant tumor on the other kidney, and
the cancer had already metastasized to her bones.
Dr. Li Ming-che suggested chemotherapy, but she said,
“Since metastasis has already occurred, just let it
be.” She asked, “I received a kidney from a stranger,
so what organ can I donate?” Dr. Li told her she could
donate her corneas, and Li agreed.
Li didn’t want her mother to know about her
condition, so every time she came home from the hospital,
she bore the pain and just told her mother, “It’s
nothing; I’ll be fine after I take my medicine.” She
also kept going to work to make everyone believe that she
was still healthy.
However,
her strong will couldn’t fight against the vicious
illness for long. She was hospitalized in March 2004, and
was transferred to the Lotus Ward (the palliative care
ward for terminal patients) in April.
Li was an understanding person. One week before she
passed away, she knew it was about time. She would take a
bite of every piece of food visitors brought her. If she
couldn’t swallow it, she would at least touch it with
her lips to show that she had received the love.
On April 16, she told Dr. Li as though she was in a
dream, “Dr. Li, thank you very much. I still need your
help with my last wish….” She even gave him a thumbs
up to praise him as a very great doctor.
Dr. Li nodded his head, held her hand, and said,
“Okay, thank you and bless you….” Choked with sobs,
he lowered his head and left the ward.
The following day, Li passed away with her family by
her side. The organ transplant team removed her corneas
and fulfilled her last wish of leaving her love behind in
the world. Her sister said, “After her corneas were
removed, my sister smiled more brightly. Her lips curved
like a crescent moon, expressing her joy at fulfilling her
last wish.”
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