The
separation surgery was more than satisfactory. Rachel and
Lea, a pair of Siamese twins from the Philippines, won
independent new lives.
It was the peak of summer. Twilight was still lingering
in Hualien, eastern Taiwan, and the evening sky was
scattered with beautiful clouds. Marieta was seated in the
pediatric ward at Tzu Chi Hospital, holding one of her
daughters, Rachel, and feeding her tenderly with a small
spoon. Occasionally, she threw a gentle glance upon Lea,
her other twin daughter, who was playing with a stuffed
toy on a bed. Marieta's eyes beamed with the light of a
loving mother.
Rachel and Lea had been recovering quite satisfactorily
since the separation surgery performed half a month
before, on June 28. Marieta was happy and contented. It
had been three months since she had brought the twins from
the Philippines to Taiwan on April 16 for the separation
surgery. The trip to Taiwan proved to be a major turning
point for her and her twin daughters.
A chance encounter in times of
despair
One evening early this year, six-month-old Siamese
twins Rachel and Lea had a seriously high fever. The next
day, their parents, Andy and Marieta, took them to a
children's hospital in Manila. The family, who lived in
Kalinga, a mountainous village to the north of Manila, had
to travel more than ten hours on bumpy roads to reach the
hospital. The medical treatment that ensued cost a lot of
money, which constituted a heavy burden on the financially
strained couple. What was even more discouraging was that
even the physician who treated their daughters tried to
persuade the couple to give up on the twins. This was the
saddest and most distressful moment in Marieta's life
after giving birth to the pair of abnormal children.
Fortunately,
Rachel and Lea's health recovered after treatment. But the
doctor told the parents that if they wanted to have the
Siamese twins separated, the surgery should be carried out
as soon as possible. That was, however, beyond the means
of Andy and Marieta, who farmed for a living, since the
surgery would cost over a million pesos [US$22,857]. All
they could do now was leave it to fate.
The children's hospital in Manila tried to raise funds
for the couple, but it did not go well. At a crucial
moment, Marieta came across Tzu Chi volunteer Li Wei-sung,
who had come to the hospital with an indigent boy
afflicted with hydrocephalus. After learning of the
desperate situation the couple was in, Li had a discussion
with the hospital and decided that Tzu Chi could provide
assistance for Marieta's family.
Li reported the case to the Tzu Chi headquarters in
Hualien. In order to save time, the Hualien Tzu Chi
Hospital sent Dr. Peng Hai-chi, head of the surgical
pediatrics department, and Dr. Li Chao-chin, head of the
image diagnosis department, to the Philippines in February
to conduct a preliminary check-up on the twins. Assisted
by Dr. Lu Hsiu-chuan, head of the Philippine chapter of
TIMA [Tzu Chi International Medical Association] and vice
superintendent of a hospital in Manila, Peng and Li used a
high-resolution ultrasonic imaging system to examine the
twins. The examination results showed that the twins stood
a good chance of surviving the surgery because they were
joined at the livers and the pericardia, but not the
hearts. The decision was made to arrange for the twins to
come to the Hualien Tzu Chi Hospital for separation
surgery.
Siamese twins occur due to the incomplete division of a
zygote 13 days after the conception of identical twins.
The chance is one in every 50,000 to 100,000 births.
Thanks to advanced prenatal diagnosis in Taiwan, similar
cases have not occurred in Taiwan for years. However, the
occurrence rate is comparatively high in the Philippines,
where the distribution of medical resources is uneven and
prenatal examination is not thoroughly carried out.
"Generally speaking, there is a 60 to 80 percent
chance of success for twins that are joined at the abdomen
to be successfully separated," remarked Peng, who
once received professional training on the separation of
Siamese twins at a medical center in Philadelphia.
"Siamese twins can be conjoined at the heads, chests,
hips, etc. Rachel and Lea were joined at the chests and
livers, the most optimistic for separation surgery."
Peng emphasized that the prime time for a separation
surgery to take place is three to twelve months after
birth. If the operation is carried out later than that, it
will not only result in deformity of the spine, but there
will also be foreseeable impact on the psychology of the
twins. Since Rachel and Lea were less than one year old,
the timing was just right for them to undergo the
operation.
Li added that Siamese twins cannot exist without each
other--when one passes away, the other will die
immediately. That was another reason why Rachel and Lea
had to be split from each other.
The separation surgery
For the separation surgery at the Hualien Tzu Chi
Hospital, a team was formed of doctors from various
departments including general surgery, pediatrics,
anesthesiology, plastic surgery, image diagnosis, nursing,
and humane care. The team made an exhaustive evaluation of
the surgery and repeatedly carried out simulated surgeries
on model dolls which had been especially made for the
occasion. The hospital purchased many precision
instruments that could also be used to treat similar cases
in the future.
After full preparation, Rachel and Lea were escorted to
the surgical room at 7:45 a.m. on June 28.
At
10:17, Peng made the first incision. Following the
procedure enacted in the simulated surgeries, the medical
team cut open the abdomen and then dissected the connected
pericardia. Stitches were then made to mend the separated
pericardia to prevent fluid from flowing.
"Leakage of fluid might have affected the hearts
of the twins, so the separated pericardia had to be mended
immediately," noted Dr. Peng. The pericardium is the
membrane that surrounds the heart; it provides room for
the beating of the heart and prevents the heart from
rubbing against other organs. The fluid inside the
pericardium works as lubrication for the heart.
After the conjoined pericardia were split, the most
important part of the surgery ensued: the separation of
the livers. Dr. Li Ming-che took over. Li had had surgical
experience in liver transplantation, so severing the
livers was not such a hard task for him. Nevertheless, he
made every incision with the utmost care. In order to
minimize hemorrhaging, he intentionally carried out the
procedure very slowly. To fully concentrate on every touch
of his scalpel, he rarely blinked his eyes during the
two-hour liver separation operation. The livers were
successfully divided at 1:58 p.m.
After that, the other doctors of the surgical team,
Chang Yao-jen, Li Ming-che, Chen Hua-tzung, and Peng
Hai-chih, proceeded in two groups to mend the wounds of
the twins by applying artificial membrane and skin and
suturing the cuts.
Rachel, who had a smaller wound that took less time to
sew up, was delivered out of the surgical room first. The
crowd waiting outside the room applauded cheerfully. Lea
came out 20 minutes later. The six-hour operation had
ended successfully.
Dr. Chang Yao-jen, vice superintendent of the hospital
and head of the surgical team, commented that the success
of the separation surgery could be attributed to the close
cooperation of the team members. What was also worth
mentioning was the small amount of hemorrhaging during the
surgical process. Actually, the bleeding was so minimal
that there was no need for blood transfusions. This was
truly remarkable, he noted.
According to Li, who had assumed the major task of
separating the livers, the minimal hemorrhaging was a
result of the accurate evaluation carried out by the image
diagnosis department beforehand, which allowed him to make
every cut with precision. The proper dosage of anaesthetic
administered by the anesthetists also freed him from worry
in the surgical process. Furthermore, the utilization of
advanced medical equipment also contributed to the
efficient control of bleeding.
Wishes and blessings
Rachel and Lea were kept in the intensive care unit for
close observation during the first few days after the
surgery. Because they recovered well and were able to eat
and eliminate normally, they were soon transferred to the
children's ward.
Lu Chi-yen, chief nurse of the children's ward, said
that in order to give the best care to the twins, nurses
responsible for taking care of them had read through all
related nursing information. She also asked Dr. Chen
Jui-hsia and staff worker Tsai Sheng-lun, who could speak
the Philippine language, to translate for Marieta and the
hospital staff and to teach the staff simple dialogues to
facilitate communication.
After Rachel and Lea were separated, they became very
active and often fought for
the attention of their mother. In order to ease Marieta's
burden, Tzu Chi volunteer Chang Chi-hsueh often went to
the ward to help take care of the twins.
Usually children can walk by the time they reach one
year old. Because Rachel and Lea were conjoined for a long
time, their limbs did not have the chance to develop
properly. The Tzu Chi Hospital therefore arranged for a
physiotherapist to teach them to sit. After a few days'
training, Rachel made considerable progress. She learned
to ride a roller walker, although she often rolled
backwards. Lea, who was thinner and smaller, had gained
some weight and was catching up with her twin sister. The
twins are expected to be able to walk in two or three
months.
Rachel and Lea were the first Siamese twins that the
Hualien Tzu Chi Hospital has successfully separated. They
were also the ninth separation surgery case in Taiwan.
Although Nature played a joke on them, the medical team at
the Tzu Chi Hospital made the best use of their skills to
give them new lives. The twins, with their big, bright
eyes, looked so innocent and lovely. Did they know the
separation surgery had completely changed their fates?
Many people in Taiwan expressed care and concern for
the twins. Marieta said that never in her life had she
felt so much warmth and love. "I will do my best to
educate my daughters so that when they grow up they will
do their best to help others."
Marieta and her twin daughters returned to the
Philippines on August 21. There, local Tzu Chi volunteers
will continue to care for them and follow up on the
condition of the twins. A brand new life is waiting for
the family. |