She doesn't know where she will be or what she will be
doing for any given day beyond the present moment. In
spite of this, she continues to thrive on a busy life, her
days spontaneously scheduled with events including
activities and visits with patients all over Taiwan.
Sister Chang Mei-li, or "Pretty" Chang, is a
palliative care volunteer worker whose life is filled with
the unexpected and unplanned, often depending on the needs
and changing conditions of her patients. Since she has
been working this way for over ten years, she no longer
keeps track of time. Over the years, her work with her
patients has taught her much. Mei-li has seen many things
and dealt with many inescapable life issues that people
continue to grapple with--one being death. Here, insights
can be gleaned from her words and experiences.
With her arms crossed over her pink vest, Chang Mei-li
stood outside the operating room, waiting in anticipation
with the patient's family. A patient was undergoing
surgery for a second time to remove the remains of a
benign tumor found near her chest. When the patient
finally walked out looking normal and unfazed, they all
smiled and embraced her.
That morning, Mei-li accompanied patients' families and
visited patients at the Shin Kong Hospital in Taipei. As
she made her way about the hospital, she was paged by the
constant ringing of her cell phone--tients, friends, and
affiliates kept calling and bidding for her time. Before
lunch, she would be leaving to visit elsewhere in Taipei.
And later in the afternoon, she would be heading off again
to visit patients at another hospital in Kaohsiung, on the
southern end of the island. Within three hours, what had
started out as a relatively unscheduled day for Mei-li at
Shin Kong Hospital was immediately filled with many
responsibilities to address.
Spontaneity marks her life. Mei-li lives in the moment,
concentrating on the present to take care of tasks that
came up one after another. Even though she goes around to
several places in one day, she is focused in the present
and thoroughly immersed in her duties. "If you follow
me as I run around, you will get tired," Mei-li
chuckled. But she has grown accustomed to it, having been
a palliative care volunteer worker since the 1980s.
Palliative care entails visiting and soothing patients,
most of whom are terminally ill, to alleviate some of
their suffering during the passing remainder of their
lives.
Upon entering a room on the eighth floor, Mei-li was
cordially welcomed by a patient and other hospital
workers, who were delighted to see her. The patient looked
up from her bed, smiling brightly as Mei-li seated
herself. Mei-li has apparently developed the ability to
bring warmth and familiarity to her patients when they see
her, as if seeing an old friend again. Indeed, she regards
and talks to her patients as if they are good friends or
dear family members. She is informal and personable in
conversation, laughing easily and regarding matters in a
relaxed way. As the patient chatted with her, Mei-li
remained lively and approachable. She showed enthusiasm
when speaking, sprinkling the conversation with touches of
humor here and there.
"I just came back from Vancouver, and I was there
for eight days..." Mei-li is able to share her life
as well, not being limited to just listening to patients
talk about their own lives. In this way, patients show
interest in knowing her--how she is doing and what is
going on in her life. Perhaps this ability gives her a
down-to-earth quality that attracts people's attention
when she talks.
"Have
you been eating well lately? Vitamin C? Make sure to get
enough vitamin C and water." Mei-li showed her
concern for the patient, even through such
"little" gestures. Caring for patients is not a
matter of showing sympathy, of expressing excessive
sentimentality or feeling. Mei-li understands this and is
thus capable of showing genuine concern without the need
to please her patients. For the most part, she is able to
understand what her patients are going through as well, as
we saw when the patient remarked that her neck felt hot. A
hospital staff worker thought that perhaps the air
conditioning was not cool enough for the patient. As the
worker proceeded to adjust the temperature, Mei-li
explained, "No, it's because she's been constantly
lying in the same position on that pillow. Her neck feels
hot, but the rest of her body is cool. If you lower the
temperature, I'll have to get a coat for her." The
patient confirmed everything she said.
"Who comes to look after you at night?" asked
Mei-li.
"My daughter, a pity for her," the patient
replied.
"No, let me tell you. You don't need to say that
it's a pity. She should actually be thanking you. Right
now, your situation is like that of a bodhisattva's. She
can become a bodhisattva because you're giving her the
chance to help you."
A ray of insight shone through as Mei-li's comment
captured the innate wisdom she had honed from her
experiences. Like a flip of a coin, she had transformed a
negative perception commonly held by patients (and
workers) into a positive one, enlightening their spirits
with an uplifting outlook. From years of experience,
Mei-li understands very well that not all interactions
with patients present themselves as opportunities for
volunteers to become bodhisattvas (those who unselfishly
and selflessly give to others while aiding them and
alleviating suffering.) "Sometimes even if you want
to help, you may be unable to because the patient doesn't
know you well enough or doesn't want to talk to you."
Those situations present challenges to anyone, even to
someone like Mei-li, who thinks of ways to overcome them
by accommodating herself and becoming familiar to the
patient. On the other hand, Mei-li also explained,
"Even if you have the heart to help in volunteer
work, what matters the most is that you are sensitive
enough to know how to help patients appropriately. If not,
your assistance may become a harmful endeavor because you
may end up hurting the patients instead."
"I've learned the most in life through my
volunteer work, which always gives me opportunities to be
thankful. What is there to be thankful for? There are so
many different hospitals, different patients, and
different methods utilized in helping patients, all
teaching us so we can learn from them. All of these give
us opportunities to be thankful."
When asked whether her views on life or death had
changed within the past few years (from the last time she
was interviewed by the Tzu Chi Quarterly in the winter of
1996), she responded with a generalized answer but gave an
interesting analogy. "Of course it has changed, just
as life continues to change, like an elementary school
student who starts by learning the alphabet and then
continues to learn whole words. Everybody is learning,
carrying a backpack that is essentially empty--ybe filled
with books they cannot comprehend--t eventually and
completely filled with love." Patients serve as
teachers, and Mei-li has worked with a multitude of them.
Many of her patients have cancer or other terminal
illnesses, and many have passed away over the years.
From having seen the suffering and pain endured by her
patients, she has learned much about the meaning of life,
all the more learning to appreciate and be thankful for
her own life. As Mei-li succinctly put it in a poignant
Chinese phrase: "From other people's suffering, one's
own fortunes can be seen."
This teaching was made clearly apparent when Mei-li
ascended to the tenth floor to visit her third patient, a
man inflicted with oral cancer. The patient's gaunt face
was wrapped with bandaging around his lower lip and chin
and a little of the neck. A small, strange-looking
appendage of rotted skin protruded just at the edge of the
bandage. The patient and his wife happily greeted Mei-li
when they saw her enter. The patient couldn't smile very
well, but he conveyed his delight towards her through his
beaming eyes. His words came out in a murmur as he
deliberately tried to speak. His wife later talked about
the difficulties he was having in consuming food. It had
gotten to the point where he could only swallow processed
liquids, sometimes through a tube inserted in his mouth.
Reflections from the past
Mei-li has come a long way. Her life's journey has
taken her through various life conditions and experiences,
through many spiritual realms ranging from heaven to hell
on earth. Her early life starkly contrasts with her
present existence. In her early adulthood, Mei-li opened a
bar and worked as a bargirl in order to pay off debts. It
was very easy to earn money. But with money easily earned,
she also easily, casually spent it. As she recalls,
"I spent it every day on three things: food, drinks,
and clothes." She was also a heavy smoker and
drinker. She said, "I would get drunk twice a week,
three times a day. It was just excessively
ridiculous."
Her life changed when she met a Tzu Chi member at a
beauty parlor who told her about the organization. Through
an unexpected turn of events that led her to visit the
Abode of Still Thoughts and to chance upon Master Chen
Yen's visage--riving by car, the Master happened to gaze
out the window at her--i-li was intensely shaken but
deeply moved. Something was triggered inside of her, and
she found herself being gradually drawn and slowly
immersed in Tzu Chi. On one occasion, she decided to tag
along with Tzu Chi members to visit a needy family. What
she saw there shocked her and drastically altered her
attitude from careless indifference to shame and
repentance. It was the first time she had ever felt such
deep remorse. From then on, she sincerely began to
transform herself. It took nearly a year of struggle and
torment for her to change her old life habits, especially
to abstain from alcohol. Mei-li underwent severe
withdrawal symptoms: her hands would shake and tremble so
much that she had to hold a cup of tea with both hands; a
spoonful of rice would look like a spoonful of worms; and
floral-designed wallpaper would look like monstrous
creatures.
Despite her hardships, Mei-li persevered in her
determination to become a better person. She constantly
reminded herself of the wholesome beauty and goodness she
saw in Tzu Chi. It was an entirely different world for
her, one that was untainted and pure. Mei-li knew that
becoming a part of it would mean her conduct would be
noticed-- a representative, she didn't want her personal
downfalls to stain or injure the integrity of Tzu Chi.
When she started volunteering at hospitals, she
encountered difficulties as well. For one, Mei-li was
afraid of the filth and disease she saw in the patients.
She felt uncertainty and discomfort on the first day she
worked in the hospital. But after reflecting on the day's
events, she told herself, "I've already come this far
and what have I learned? Fear. Learning fear would just be
a waste. So why not get over it?" With that, she
affirmed herself and stepped over that barrier.
Focusing on the present
Nothing comes that easily, as seen through Mei-li's
difficult encounters when she first began working with
patients. Nowadays, overcoming challenges takes a little
less effort since she has accumulated years of experience.
Breaking through problems is a little bit easier for her.
"In the past, I probably would have been stubborn and
blamed myself for being so stupid, incompetent, and so on.
Or I would have wondered about others and put the blame on
them, complaining that they were being
uncooperative." It's different for her now. Instead,
she might attribute her difficulties to communication
problems or a lack of familiarity with the patients. It
takes time. She explains that one needs to develop
patience and tolerance.
The most challenging part in working with patients
involves self-initiative. Mei-li described how taking the
first step in communicating with patients was usually the
most difficult, but it also depended on the individual.
"Let's say that you decide to visit a patient and you
don't know her very well. But you go see her anyway and
you stand there--e patient doesn't know what to say and
you don't know what to say. How embarrassing it is! But of
course when you first come in contact with patients, you
have to start from the unfamiliar. So you have to think of
a way to get beyond that. This
first step is the most important."
The ability to become acquainted with patients easily
is a skill Mei-li developed through practice and
persistence. Although she doesn't describe how she tries
to get to know patients, her abilities have evidently
improved over the years. Mei-li recalled, "There was
one time when a friend went with me to visit a patient.
After we came out, she asked me, 'So how long have you
known that patient?' I said, 'No, I didn't know him. We
just met today.' And she said, 'Oh! I thought you had
already known him for a long time.' So you see, this has
to do with a person's past experiences in life."
Everyone has their own shortcomings, some to a greater
extent than others. Mei-li pointed out a specific fear
that many people have, a common obstacle present in social
interactions and experienced even more by those doing
palliative care. Marked by wisdom and profound
understanding, she offered several insights on dealing
with this fear in handling patients. "What people
fear the most is rejection, because if you fear rejection,
you'll fear moving forward." According to Mei-li,
being rejected is normal because patients have their
moments when they want to be alone. Some may even have
cynical attitudes about being helped and thus appear rude
or unfriendly. "But no matter what, we must be
extremely sensitive in paying attention to a patient's
actions, words, or gestures--is offers us an opportunity
to 'enter.'" When rejected by a patient, volunteers
have to remind themselves that they, like the patients,
have tempers as well. Volunteers have to be even more
tolerant. As Mei-li says, the more negative a patient is,
the more it means the patient needs help. "Through
this process, one can learn from the patient, for a
'teacher' has finally appeared."
Because patients' moods vary, just as their physical
conditions change, patients' reactions to volunteer
workers will fluctuate, sometimes even within brief
periods of time. Mei-li gave an example, saying that one
minute a patient could be talking just fine, but in the
next minute he could suddenly change and respond
differently to another person. "When this happens,
you have to accommodate yourself to the patient, not the
patient to you. He's the patient and he's sick. You
shouldn't ask the patient, 'How can you be like this?' or
wonder, 'He was fine just then, but what's wrong with him
now?'" As she points out, volunteers should be doing
the adjusting, not the patient. Since volunteers also go
through fluctuations, how can they reject patients when
they do too?
According to Mei-li, people need to have the capacity
and endurance to see all different points of view when
others give opinions concerning them or their work.
Stubbornness will lead to problems. "If you
constantly think, 'But my way is right' and so on, then
you'll have several blind spots." Mei-li explains
that these blind spots--rsonal faults and errors--ed to be
broken by others. When they're broken though, it really
hurts. "It's just like wearing a fake mask. When
people point out blind spots, this mask is ripped off,
resulting in pain. The amount of pain experienced depends
on how tightly the mask has been worn." Mei-li has
discovered that wearing a mask is of no use when working
with patients. There is no need to wear a mask because one
just has to be genuine. "The real self is the best
self," she observed. External appearances are
superficial and unnecessary. People often try to maintain
facades or masks to cover up personal flaws and protect
themselves from getting hurt. Ironically, their attempts
end up getting them hurt even further
"There's nothing glorious about doing volunteer
work." From Mei-li's perspective, volunteer work is
simply about others giving people the chance to learn, to
learn things that one has never seen in books. The things
people read and learn from books often transpire much
differently from real life experiences. Academic learning
(the kind learned from books) usually just grazes the
surface level of existence and affects people only
temporarily. So experiences and feelings attained from
books are only short-lasting and easily forgotten.
"But when you devote yourself to doing something in
real life, that experience will leave a mark upon your
heart, carving a deep and lasting impression that will
probably never be forgotten." Mei-li continued to
elucidate the fleeting nature of experience from books and
mentioned that speeches had the same quality as well. She
felt that the transience of these experiences was
comparable to the short-lasting nature of mundane
activities such as eating, drinking, and socializing.
Speculating about the future
"I'm afraid of death. Who's not afraid? There
isn't anyone who's not afraid. Death comes to everyone, so
who wouldn't fear it?"
Death is unavoidable, and no one is exempt from it.
Even Mei-li, who has witnessed the deaths of many of her
patients, is afraid. But she points out that fear is
natural. The fear of dying is innate in everyone. What
matters is how people approach death in the way they live.
She explained, "You often hear about learning from
life's experiences. Life is here now. Death hasn't come
yet. Your life at this very moment is the most
important--w to live your present life well, how to make
the best use of it... You can learn things from a teacher
and recite lessons word for word, which is useless. You
might as well be a tape recorder. What is important is
having direct experience. Not until you directly
experience something by taking action and going through
with it can you own it and call it your own
experience."
"I'm
not afraid to go to hell in my next life. If I go there,
I'll continue to help all the suffering creatures
there." Mei-li further explained, "What I mean
is that people don't necessarily have to go to heaven.
There's already a heaven and hell on earth. It depends on
what you do. If you don't go to heaven and end up in hell
instead, that's alright, as long as you help living beings
cross over to the other shore of enlightenment."
According to Mei-li, going to hell is not necessarily
suffering. Going there is to help suffering creatures. So
everyone's mission is different. Going to heaven or hell
isn't a choice given to people. She emphasizes that no
matter where one goes in this life's mission, one needs to
have a lot of endurance.
Mei-li has emerged as a brave woman, instilled with
strength and clarity about her life's mission. One wonders
if it would have been possible for her to arrive at her
present state if she hadn't undergone the previous
experiences in her early life. But she has no way of
knowing. It is hard to say. Speculating on this, Mei-li
said that maybe she would have been a placid child, a very
simple girl. Maybe she would have gotten married, had
children, and stayed home to take care of them. It's also
possible that she might not have gotten involved with
volunteer work. She believes that people's lives are based
on cause and effect, a process that is constantly in
motion. [The Buddhist law of cause and effect explains
that all of life's occurrences are the effects of causes
planted in previous lives. What one sows in the present
will produce an effect in the future.]
After many years, Mei-li's role as a palliative care
worker has shaped her into what she is today. No matter
where she goes, she devotes her life to helping others.
"Live in the moment" will continue to be her
motto. Mei-li best summed up her life's volunteering
experiences when she said, "Volunteer work becomes a
duty. It's not that you help patients. Rather, they give
you the chance to learn." |